Update

Oct. 11th, 2008 03:58 pm
ivyblossom: (Default)
[personal profile] ivyblossom
It was pointed out to me recently that I haven't posted in a while. So an update:

About three weeks ago I was diagnosed with severe anemia, probably caused by my recent cancer treatment. (Both severe hypothyroidism and radiation cause anemia). I'd been in denial about feeling bad and getting worse for a couple of months, and refused to even consider going to the doctor until I started losing my balance and needing to sleep 18 hours a day. Stupid. I'm feeling a lot better today. So at least I'm on the upswing. I don't feel like sick chick today. That's a bonus I'm grateful for.

On the cancer front: at 6 months post radiation, I'm still reading cancer-free. I'm off the "every three months" schedule to once a year, which shows you just how unworried my endocrinologist is about me. An ideal resolution to what has been a textbook treatment process. For the record: when someone tells you that a certain treatment is easy, remember that no cancer treatment is easy on your body. It's more of less easy for the doctors to conduct, and requires more or less direct intervention from hospitals and doctors, but cancer treatment is hell on your body. I'm very happy it's over, and the idea of ever having to go through it all again could very well give me a mental breakdown. (That's not a good "cancer survivor" attitude, is it!)

I'm feeling relatively at peace with my cancer survivorship status; I'm interested in getting more involved in Relay for Life (both in the real world and in Second Life. I've bonded with other folks with the label. I have forgiven my body for the bad things its done, and I'm grateful to it for the things it didn't let happen to me (using calcification to prevent metastases, for instance, and for keeping my malignancy differentiated and easy to treat). I'm interested in talking about what it's like to have cancer and raising awareness in general; not about cancer (everyone knows about cancer) but actually about how many of us survive and go on to be productive members of society. Everyone dies eventually; lots of people who have had cancer do go back to having normal lives, and the incredible fear that comes along with cancer is way out of proportion. I want people to see how many of us have been through it and are still around and making the world a better place.

In other news, I'm heading off to Copenhagen tomorrow for a week-long conference on internet research. My newly-acquired husband is a founding member of the association hosting the conference, so he'll be there as well, which is great because we live in different countries right now. I'm really looking forward to it. That conference is tons of fun, and hey, who says no to Copenhagen?

My darling cat, Horatio, is going to stay with a friend for the week. Right now he's curled up on his chair by the window, completely unaware of the fact that, in a few short hours, I'm going to quickly and quietly dump him into his carrier and he will be whisked away. Hopefully one day he will learn to forgive me.

I've been watching star trek episodes at work, starting with season 7 and working backwards. I'm on season 5 now. I've got two monitors, so I keep the episode at the farthest corner from me. It plays in the background, and since I've seen every episode, they're just comforting. The people I work with have taken to looking at my screen through the window and guessing which episode I'm watching. Work is awesome, and I can't quite believe how lucky I am. Not only do I have what is certainly the best job for my personality, my employer and my co-workers have been incredibly understanding about my on-again off-again health. I guess this is one of the bonuses to having a terrible diagnosis (not so terrible though, really!)

The husband sent me a 6-month-iversary present; a glowing little shy guy (him) that flickers colours and light in response to sounds. Also a guide to touring Amsterdam, Brussels and Bruges, which is where we're going for our "honeymoon" right after christmas. The distance thing? Not so bad. Not when we're both online constantly, employing twitter, flickr, IRC, IM, Second Life, and blogs on a regular basis. It's like he's right there...except...that he's not making dishes for me to wash. :) Looking forward to hanging out with him in Copenhagen, though.

I'm doing American Thanksgiving with his family in Ohio. His mother has cats. 12 cats. TWELVE CATS. She rescues them and then can't part with him. You gotta love a woman with 12 cats.

So how are you?

Date: 2008-10-11 08:43 pm (UTC)
From: [identity profile] ninja-tech.livejournal.com
:D Wow! Great to hear that things are going better! Life is treating me alright and I probably spend way too much time on LJ. *unashamed grin*

Enjoy the trip and stop by more often! *hugs*

ETA: And YES - you gotta love a woman with 12 cats. XD
Edited Date: 2008-10-11 08:44 pm (UTC)

Date: 2008-10-11 09:35 pm (UTC)
From: [identity profile] treehavn.livejournal.com
Everyone dies eventually; lots of people who have had cancer do go back to having normal lives, and the incredible fear that comes along with cancer is way out of proportion.

True. I think I reacted the way I did when my mum got sick primarily because my opa had ignored his prostate cancer symptoms for so long that it was ultimately terminal. Although my mum was quite a serious case, touch wood, she's cancer-free now. Treatments have come on leaps and bounds. Silly you for not attending to the anemia thing earlier - there's normal post-treatment tiredness, when your capabilities are worn way down, and there's being seriously depleted. Glad you're feeling much better now though. Can't wait to see you both!

Also: bugger, you're coming Europe-wards the end of the year? What are your dates - if we're not in Canadia by then maybe we can hook up for a few nights in Amsterdam (which is a wonderful city btw)?

Date: 2008-10-11 10:05 pm (UTC)
venivincere: (Default)
From: [personal profile] venivincere
(That's not a good "cancer survivor" attitude, is it!)

Actually, it's honest -- so many people who've gone through treatment once and have the misfortune to relapse often choose not to take further treatment for that very reason.

But anyway, I'm glad to hear you're doing so well! I hope you have a lovely American Thanksgiving and enjoy Copenhagen and your honeymoon! :-)

Date: 2008-10-11 10:54 pm (UTC)
From: [identity profile] laurenmitchell.livejournal.com
Everyone dies eventually

True, but it's nice to know that you'll be hanging around a bit longer.

Date: 2008-10-11 11:28 pm (UTC)
From: [identity profile] maruchina.livejournal.com
I'm glad you're doing better! I think you're dealing with all of this in a manner I have to admire.

I'm doing well and will be studying at the University of FLoriday from January - May. :D So I'm busy arranging all sorts of things that come with going abroad, writing my thesis and working 24 hours a week, but very excited about getting everything organized.

If you have some time when you're in Amsterdam, I'd love to meet up, by the way!

Date: 2008-10-12 04:01 am (UTC)
From: [identity profile] aldiara.livejournal.com
Good to hear from you and that you seem to be in the clear of cancer-aftermath. I'm not sure there's a "right" cancer survivor attitude - frankly the people who come over all like it didn't affect them at all scare me a little. Just keep taking good care of yourself.

Have a fab time in Copenhagen, I'm jealous!

(What's new with me? Spring in New Zealand, wheee! And I have fallen head over heels for a new fandom. Gay!German!Soaps! Is best thing ever! ... yeah, don't ask, lol)

*hugs*

Date: 2008-10-12 07:11 am (UTC)
From: [identity profile] ixchelmala.livejournal.com
It's good to see a post from you:) I've been thinking of you (and all the awesome ways you made an impact in my life while I grew a little more in this space: LJ, fandom, the making of new friends and all that goes with it.) Thank you. I know I've said it before, but really, it's been a wonderful ride that I'm still reaping from... and in many ways, you were one of my first impressions of how awesome things here are. So yeah.

As for me?

Married life is creeping along. In good ways. Who knew I'd have so much fun working on our household budget together with my Math half?

So yeah, once all this number stuff is done, we'll be on track for other things like travel and maybe a house, if this global financial meltdown doens't make things worse.

Oh yeah,I almost forgot to tell you. I have some mp3s covers of your She Says and others. Flitzer says, if youre interested, we can clean up some of the hiss send them on to you. Let me know.

Date: 2008-10-12 10:20 pm (UTC)
From: [identity profile] nest-freemark.livejournal.com
So I start reading LJ again after being too busy with life, World of Warcraft and finding an oh-my-a-man and I find that you've both gotten married to a man and fought cancer.

:D!

I'm happy that you're still cancer-free and that you've found someone to love. :)

Date: 2008-10-12 10:41 pm (UTC)
ext_5724: (Default)
From: [identity profile] nicocoer.livejournal.com
It sounds like you have some good work there. :)

I hope you enjoy your conference and seeing your hubby!

And his mom has 12 CATS? She sounds awesome!

Date: 2008-10-13 04:15 pm (UTC)
From: [identity profile] applekid.livejournal.com
are you taking iron supplements for your anemia, or is there some other therapy they use?

i'm really glad you're feeling better, and that your prognosis is A+.

yayyy!

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